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Sweetgeek said:
I'm not ok today, I haven't been for over a week now. I need to stop reading shit online because it makes me more nervous and panicky and making me doubt everything I think I know. Being a parent is the most wonderful thing but also the most terrifying.
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If it is medical, then definitely DO NOT READ online stuff (sorry not shouting with CAPS but emphasising the point). Yep, being a parent is tough (I should know) but we do it because it's what we love doing.

Do you wish to share info?
 
My son had another ear infection so took him to the doctor and whilst there I asked for a referral to see someone about his hearing and also a referral to a speech pathologist, because I am a little worried about his speech. He can say whole sentences and express himself well, but it is a little slurred and words are incomplete- example he will say cay instead of cake or lun instead of lunch. He will be three in 3 or so months. Then the GP flat out asked if I ever considered my son to have autism... I was stunned, because no I never did. He gets along with children well, even just before logging on here, he was pretending to make food with play dough and coming up to me and his older brother to see if we would pretend to eat his food. He loves being read to even joining in with his own analysis of what he sees from the pictures. He does have his quirks and some of those things are he needs to hold my hand before entering a room he is not always familiar with, he needs to put objects away before getting out another, he may throw a tantrum if he does not do things his way or if I try and do it when he can do it himself- but not all the time, he likes to make himself cross eyed by slowly moving his finger to his nose... But I never saw these things as anything more than quirks. When the GP started talking to me about autism and the new way of defining it, it just threw me off and looking at videos on youtube and reading about it, I am second guessing myself as a parent and everything else. I have booked in to see a pediatrician in a few weeks but until then I can't seem to settle myself. After a week I just cried myself stupid yesterday. I'm scared and anxious. I feel the dr's analysis of my son is wrong, I really do because I have seen him at preschool and I have seen him with his cousins and with people he is really good. But the online information is just getting to me and I can't stop this overwhelming buzz inside of me that is right now taking over.
 
Sweetgeek said:
My son had another ear infection so took him to the doctor and whilst there I asked for a referral to see someone about his hearing and also a referral to a speech pathologist, because I am a little worried about his speech. He can say whole sentences and express himself well, but it is a little slurred and words are incomplete- example he will say cay instead of cake or lun instead of lunch. He will be three in 3 or so months. Then the GP flat out asked if I ever considered my son to have autism... I was stunned, because no I never did. He gets along with children well, even just before logging on here, he was pretending to make food with play dough and coming up to me and his older brother to see if we would pretend to eat his food. He loves being read to even joining in with his own analysis of what he sees from the pictures. He does have his quirks and some of those things are he needs to hold my hand before entering a room he is not always familiar with, he needs to put objects away before getting out another, he may throw a tantrum if he does not do things his way or if I try and do it when he can do it himself- but not all the time, he likes to make himself cross eyed by slowly moving his finger to his nose... But I never saw these things as anything more than quirks. When the GP started talking to me about autism and the new way of defining it, it just threw me off and looking at videos on youtube and reading about it, I am second guessing myself as a parent and everything else. I have booked in to see a pediatrician in a few weeks but until then I can't seem to settle myself. After a week I just cried myself stupid yesterday. I'm scared and anxious. I feel the dr's analysis of my son is wrong, I really do because I have seen him at preschool and I have seen him with his cousins and with people he is really good. But the online information is just getting to me and I can't stop this overwhelming buzz inside of me that is right now taking over.
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If your gut instinct tells you, you don't think your son is autistic, then you go with that for now and you wait to see what the Paediatrician says.

Reading the online stuff can be dangerous as it can be misleading and may not apply to your circumstances. No more reading ok? It's messing with your head by the sounds of things.

Hugs :)
 
GROOVER said:
If your gut instinct tells you, you don't think your son is autistic, then you go with that for now and you wait to see what the Paediatrician says.

Reading the online stuff can be dangerous as it can be misleading and may not apply to your circumstances. No more reading ok? It's messing with your head by the sounds of things.

Hugs :)
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Please just stop reading things online. I know this is upsetting, but don't let what the doctor said upset you. Get more information from an actual doctor who is an expert.

I asked a friend who had cancer how they managed the emotional aspects of waiting for diagnosis. She said she just tried to look at it as information. Information that you can then use to make decisions. That helped her lessen her anxiety.

Just keep playing with your son and being your sweet self.
 
Khun Khun said:
I am not ok, neither is my family, especially not my Dad. We found he has a mass nestled in between his bowel and kidney last week. No idea how long it's been there or where it came from but my suspicions as it seems to be a sarcoma is that all of his skin cancers over the years are coming home to roost.
Yesterday we found out that it's large, it's incurable and needs to be shrunk with chemo, radio etc before they will remove it.
He said recently that he had 2 or 3 Boxing Day Tests left in him. Ironic words now that Richie has gone.
This going to be a fight for the little 81 year old. Any prayers etc would be very gratefully appreciated. Thankyou.
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I will pray for your father and your family. Please post in this thread to let us know how you are coping.
 
Sweetgeek said:
My son had another ear infection so took him to the doctor and whilst there I asked for a referral to see someone about his hearing and also a referral to a speech pathologist, because I am a little worried about his speech. He can say whole sentences and express himself well, but it is a little slurred and words are incomplete- example he will say cay instead of cake or lun instead of lunch. He will be three in 3 or so months. Then the GP flat out asked if I ever considered my son to have autism... I was stunned, because no I never did. He gets along with children well, even just before logging on here, he was pretending to make food with play dough and coming up to me and his older brother to see if we would pretend to eat his food. He loves being read to even joining in with his own analysis of what he sees from the pictures. He does have his quirks and some of those things are he needs to hold my hand before entering a room he is not always familiar with, he needs to put objects away before getting out another, he may throw a tantrum if he does not do things his way or if I try and do it when he can do it himself- but not all the time, he likes to make himself cross eyed by slowly moving his finger to his nose... But I never saw these things as anything more than quirks. When the GP started talking to me about autism and the new way of defining it, it just threw me off and looking at videos on youtube and reading about it, I am second guessing myself as a parent and everything else. I have booked in to see a pediatrician in a few weeks but until then I can't seem to settle myself. After a week I just cried myself stupid yesterday. I'm scared and anxious. I feel the dr's analysis of my son is wrong, I really do because I have seen him at preschool and I have seen him with his cousins and with people he is really good. But the online information is just getting to me and I can't stop this overwhelming buzz inside of me that is right now taking over.
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Yeah like the others have said take a break from the 'research' and wait until you talk to an expert. What ever will be will be - nothing you can do about it - so no point in fretting.

he needs to put objects away before getting out another
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^ This sounds like the perfect child to me.
 
Khun Khun said:
I am not ok, neither is my family, especially not my Dad. We found he has a mass nestled in between his bowel and kidney last week. No idea how long it's been there or where it came from but my suspicions as it seems to be a sarcoma is that all of his skin cancers over the years are coming home to roost.
Yesterday we found out that it's large, it's incurable and needs to be shrunk with chemo, radio etc before they will remove it.
He said recently that he had 2 or 3 Boxing Day Tests left in him. Ironic words now that Richie has gone.
This going to be a fight for the little 81 year old. Any prayers etc would be very gratefully appreciated. Thankyou.
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Sending hugs and prayers to you Khun Khun for your Dad and lets hope he gets to see more than 3 Boxing Day Tests.
 
Sweetgeek said:
My son had another ear infection so took him to the doctor and whilst there I asked for a referral to see someone about his hearing and also a referral to a speech pathologist, because I am a little worried about his speech. He can say whole sentences and express himself well, but it is a little slurred and words are incomplete- example he will say cay instead of cake or lun instead of lunch. He will be three in 3 or so months. Then the GP flat out asked if I ever considered my son to have autism... I was stunned, because no I never did. He gets along with children well, even just before logging on here, he was pretending to make food with play dough and coming up to me and his older brother to see if we would pretend to eat his food. He loves being read to even joining in with his own analysis of what he sees from the pictures. He does have his quirks and some of those things are he needs to hold my hand before entering a room he is not always familiar with, he needs to put objects away before getting out another, he may throw a tantrum if he does not do things his way or if I try and do it when he can do it himself- but not all the time, he likes to make himself cross eyed by slowly moving his finger to his nose... But I never saw these things as anything more than quirks. When the GP started talking to me about autism and the new way of defining it, it just threw me off and looking at videos on youtube and reading about it, I am second guessing myself as a parent and everything else. I have booked in to see a pediatrician in a few weeks but until then I can't seem to settle myself. After a week I just cried myself stupid yesterday. I'm scared and anxious. I feel the dr's analysis of my son is wrong, I really do because I have seen him at preschool and I have seen him with his cousins and with people he is really good. But the online information is just getting to me and I can't stop this overwhelming buzz inside of me that is right now taking over.
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Take a deep breath and step away from md web..... Drs can be so insensitive sometimes. My son had delayed speech when he was younger, I'm no dr but I am sure some speech therapy will fix that. I know it is difficult, but don't stress too much, whatever the diagnosis, if there is any, you will deal with it then. In the meantime, maybe get a speech assessment done? Good luck
 
He is the perfect child. I love him just as he is. As a mum you just want your child to be a healthy child, not just for your sake but for the child's sake because the world is a cruel place, so I feel selfish that what I hope is normal and perfect is normal and perfect in the eyes of a doctor, I know how I sound and I feel like I'm letting myself and him down wanting the best outcome. But you're right, there is nothing I can do, and I am running myself in circles before I even know what the outcome will be.
 
You are such a good mother @Sweetgeek, I can just tell by every post you make on the topic and have long thought so. So no matter what your son will continue to be exposed to your love. Wait until you speak to a specialist and don't be afraid to get a second (or technically third) opinion. The thing with doctors is, as knowledgable as they are, often they are stuck in a very textbook way of thinking and forget that real life application of science will always see variables. That's not to say they don't know what they're talking about of course, but you know your son better and are clearly very attentive so I think you should trust your gut until you know more. Easier said than done, but stay away from Dr Google. He definitely needs to lose his medical licence with all the wrong diagnosis' he has given over the years.
 
Sweetgeek said:
My son had another ear infection so took him to the doctor and whilst there I asked for a referral to see someone about his hearing and also a referral to a speech pathologist, because I am a little worried about his speech. He can say whole sentences and express himself well, but it is a little slurred and words are incomplete- example he will say cay instead of cake or lun instead of lunch. He will be three in 3 or so months. Then the GP flat out asked if I ever considered my son to have autism... I was stunned, because no I never did. He gets along with children well, even just before logging on here, he was pretending to make food with play dough and coming up to me and his older brother to see if we would pretend to eat his food. He loves being read to even joining in with his own analysis of what he sees from the pictures. He does have his quirks and some of those things are he needs to hold my hand before entering a room he is not always familiar with, he needs to put objects away before getting out another, he may throw a tantrum if he does not do things his way or if I try and do it when he can do it himself- but not all the time, he likes to make himself cross eyed by slowly moving his finger to his nose... But I never saw these things as anything more than quirks. When the GP started talking to me about autism and the new way of defining it, it just threw me off and looking at videos on youtube and reading about it, I am second guessing myself as a parent and everything else. I have booked in to see a pediatrician in a few weeks but until then I can't seem to settle myself. After a week I just cried myself stupid yesterday. I'm scared and anxious. I feel the dr's analysis of my son is wrong, I really do because I have seen him at preschool and I have seen him with his cousins and with people he is really good. But the online information is just getting to me and I can't stop this overwhelming buzz inside of me that is right now taking over.
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Researching online can be a good and a bad thing depending on what you find or are looking for. Because of the speech and hearing issues I think he's asking as a natural course of assessment. Could your son require grommets? Don't worry about the online stuff for now, hard as it is. Wait until the paediatrician has made an assessment and go from there.
 
jessy_girl said:
You are such a good mother @Sweetgeek, I can just tell by every post you make on the topic and have long thought so. So no matter what your son will continue to be exposed to your love. Wait until you speak to a specialist and don't be afraid to get a second (or technically third) opinion. The thing with doctors is, as knowledgable as they are, often they are stuck in a very textbook way of thinking and forget that real life application of science will always see variables. That's not to say they don't know what they're talking about of course, but you know your son better and are clearly very attentive so I think you should trust your gut until you know more. Easier said than done, but stay away from Dr Google. He definitely needs to lose his medical licence with all the wrong diagnosis' he has given over the years.
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Thank you for the kind words :)
Khun Khun said:
Researching online can be a good and a bad thing depending on what you find or are looking for. Because of the speech and hearing issues I think he's asking as a natural course of assessment. Could your son require grommets? Don't worry about the online stuff for now, hard as it is. Wait until the paediatrician has made an assessment and go from there.
Click to expand...
I did think maybe he needed grommets which is why I wanted to do a hearing assessment of some sort. He does swimming classes, as well as my four year old son, every Friday, practically lived in a pool most of summer too. He also gets ear infections quite a bit, so I thought it was possible. I see what you're saying in regards to speech and hearing issues and the dr wanting to probe into other areas. It was always going to be hard for him to bring it up I suppose. I have banned myself from reading anymore online though. I feel I was analyzing my son's every action and went back to all his younger videos to see if I missed anything. I started to withdraw from everything and was acting like it was not bothering me until my husband had to just force me to start talking and I let out a lot of thoughts and words I did not want to speak out loud. It's weird how just talking to strangers makes you feel more at ease too. I don't know why, but it has calmed me to post anonymously about the issues on this thread.

How are you holding up? I know today has been tough for you and more so too. I hope you've given yourself some time
 
Khun Khun said:
I am not ok, neither is my family, especially not my Dad. We found he has a mass nestled in between his bowel and kidney last week. No idea how long it's been there or where it came from but my suspicions as it seems to be a sarcoma is that all of his skin cancers over the years are coming home to roost.
Yesterday we found out that it's large, it's incurable and needs to be shrunk with chemo, radio etc before they will remove it.
He said recently that he had 2 or 3 Boxing Day Tests left in him. Ironic words now that Richie has gone.
This going to be a fight for the little 81 year old. Any prayers etc would be very gratefully appreciated. Thankyou.
Click to expand...

I'm so sorry to hear this Khun Khun. I send all my best wishes to your father, yourself and your family. I pray he will beat this and that he will spend many, many, many more years around. Xx a big hug from me.
 
Sweetgeek said:
I'm not ok today, I haven't been for over a week now. I need to stop reading shit online because it makes me more nervous and panicky and making me doubt everything I think I know. Being a parent is the most wonderful thing but also the most terrifying.
Click to expand...

Sweetgeek, you are a kind soul and I know you are a great mother. I am not a parent but I know parents just want the best for their kids. You have received a lot of valuable advice in here from others. Try not to focus on it too much. Whatever will be, will be. No matter the outcome you and your family will get through it. He is still your adorable little son with Autism or not. All you can do is give him your best and love him.

Thinking of you and your family and I hope all goes well. Xxxxxxx. Big hug.
 
Khun Khun said:
I am not ok, neither is my family, especially not my Dad. We found he has a mass nestled in between his bowel and kidney last week. No idea how long it's been there or where it came from but my suspicions as it seems to be a sarcoma is that all of his skin cancers over the years are coming home to roost.
Yesterday we found out that it's large, it's incurable and needs to be shrunk with chemo, radio etc before they will remove it.
He said recently that he had 2 or 3 Boxing Day Tests left in him. Ironic words now that Richie has gone.
This going to be a fight for the little 81 year old. Any prayers etc would be very gratefully appreciated. Thankyou.
Click to expand...

*hugs* Sending good vibes your way xo
 
Sweetgeek said:
My son had another ear infection so took him to the doctor and whilst there I asked for a referral to see someone about his hearing and also a referral to a speech pathologist, because I am a little worried about his speech. He can say whole sentences and express himself well, but it is a little slurred and words are incomplete- example he will say cay instead of cake or lun instead of lunch. He will be three in 3 or so months. Then the GP flat out asked if I ever considered my son to have autism... I was stunned, because no I never did. He gets along with children well, even just before logging on here, he was pretending to make food with play dough and coming up to me and his older brother to see if we would pretend to eat his food. He loves being read to even joining in with his own analysis of what he sees from the pictures. He does have his quirks and some of those things are he needs to hold my hand before entering a room he is not always familiar with, he needs to put objects away before getting out another, he may throw a tantrum if he does not do things his way or if I try and do it when he can do it himself- but not all the time, he likes to make himself cross eyed by slowly moving his finger to his nose... But I never saw these things as anything more than quirks. When the GP started talking to me about autism and the new way of defining it, it just threw me off and looking at videos on youtube and reading about it, I am second guessing myself as a parent and everything else. I have booked in to see a pediatrician in a few weeks but until then I can't seem to settle myself. After a week I just cried myself stupid yesterday. I'm scared and anxious. I feel the dr's analysis of my son is wrong, I really do because I have seen him at preschool and I have seen him with his cousins and with people he is really good. But the online information is just getting to me and I can't stop this overwhelming buzz inside of me that is right now taking over.
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First of all, I'm glad you vented because it clearly is causing you distress. Secondly, you 100% did the right thing approaching the Doctor with your concerns. Thirdly, go the Pediatrician and then change your GP.
 
Lucas said:
Sweetgeek, you are a kind soul and I know you are a great mother. I am not a parent but I know parents just want the best for their kids. You have received a lot of valuable advice in here from others. Try not to focus on it too much. Whatever will be, will be. No matter the outcome you and your family will get through it. He is still your adorable little son with Autism or not. All you can do is give him your best and love him.

Thinking of you and your family and I hope all goes well. Xxxxxxx. Big hug.
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Thank you... more than you know x
 
Sweetgeek said:
Thank you for the kind words :)

I did think maybe he needed grommets which is why I wanted to do a hearing assessment of some sort. He does swimming classes, as well as my four year old son, every Friday, practically lived in a pool most of summer too. He also gets ear infections quite a bit, so I thought it was possible. I see what you're saying in regards to speech and hearing issues and the dr wanting to probe into other areas. It was always going to be hard for him to bring it up I suppose. I have banned myself from reading anymore online though. I feel I was analyzing my son's every action and went back to all his younger videos to see if I missed anything. I started to withdraw from everything and was acting like it was not bothering me until my husband had to just force me to start talking and I let out a lot of thoughts and words I did not want to speak out loud. It's weird how just talking to strangers makes you feel more at ease too. I don't know why, but it has calmed me to post anonymously about the issues on this thread.

How are you holding up? I know today has been tough for you and more so too. I hope you've given yourself some time
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I have my moments where the slightest thing is said or I think too much and I'm borderline weepy. The hardest bit is to know it's real, see in his appearance that it's real (I only just noticed yesterday when I was going home that he a cancer face from the angle I was looking at him from and that sounds awful but it's what I saw), and the knowledge that the person I've known for longer than anyone else, apart from Mum, is not at all well and I am helpless in gving him complete healing. I was grateful that my roster for the week meant that I could play chauffeuse for them when they went to the specialist. Thankyou for asking. Until we know what the surgeon says next week we won't know re treatments, prognoses etc. Like with your lad, it's a waiting game.
 
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